Tuesday 19 July 2022

Batten disease 'one of the worst in the world'

Batten disease 'one of the worst in the world' In many ways, Isaac Tilley is like lots of boys his age. The six-year-old loves playing outside, football and rollercoasters. But in other ways he is very different.

Last summer, after testing following two years of mystifying seizures, his parents were told he had Batten disease - one of the symptoms of which is childhood dementia.

Mrs Tilley, 35, says the family, who live in Kettering in Northamptonshire, are doing everything they can to make sure his life is as rich as possible. BBC Northampton

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