A map for better care: making effective care pathways for people with interstitial lung disease A new report finds that many people living with idiopathic pulmonary fibrosis (IPF) still aren’t getting the diagnosis, support or care they need.
Idiopathic pulmonary fibrosis (IPF) is currently an incurable lung condition with no known cause. The average life expectancy in the UK after diagnosis is 3 years.
Yet access to services, treatment and support for patients with IPF is fragmented. This urgently needs to change. We need to make health systems work for everyone living with IPF.
Patients can’t afford to waste the precious time they have left going from service to service for help. They need speedy, seamless access to the care they need, when they need it. British Lung Foundaton
See also:
Idiopathic pulmonary fibrosis (IPF) is currently an incurable lung condition with no known cause. The average life expectancy in the UK after diagnosis is 3 years.
Yet access to services, treatment and support for patients with IPF is fragmented. This urgently needs to change. We need to make health systems work for everyone living with IPF.
Patients can’t afford to waste the precious time they have left going from service to service for help. They need speedy, seamless access to the care they need, when they need it. British Lung Foundaton
See also:
- NHS urged to end 'inhuman' treatment of IPF sufferers The Daily Mail
- Lung disease patients failed by system OnMedica
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