Northampton parents of terminally ill baby locked in court fight with doctors to keep him alive Parents of a terminally ill baby who were told their son has just one year to live have been forced into a High Court battle with doctors to keep him alive.
Frank Musselwhite, 39, and Danielle Manuel, 22, were devastated when little Rimari was born with severe spinal muscular atrophy (SMA) on April 10.
The cruel condition is caused by deterioration in the nerve cells connecting the brain and spinal cord to the body’s muscles.
Rimari cannot breathe or swallow unaided, requires 24-hour care and a ventilator, and his parents say they were told he is unlikely to see his first birthday. Northampton Chronicle and Echo
Frank Musselwhite, 39, and Danielle Manuel, 22, were devastated when little Rimari was born with severe spinal muscular atrophy (SMA) on April 10.
The cruel condition is caused by deterioration in the nerve cells connecting the brain and spinal cord to the body’s muscles.
Rimari cannot breathe or swallow unaided, requires 24-hour care and a ventilator, and his parents say they were told he is unlikely to see his first birthday. Northampton Chronicle and Echo
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