Wednesday 31 July 2013

Summary report of qualitative research into public attitudes to personal data and linking personal data

Summary report of qualitative research into public attitudes to personal data and linking personal data 
Wellcome Trust - This report is the result of focus group research which examined public attitudes towards sharing personal data with researchers for public good. The focus groups had a generally positive attitude to the potential benefits of sharing data, for patients themselves and for society. And their doubts were more sophisticated than merely worrying about information falling into malicious hands, or supposedly anonymous information being linked back to identifiable individuals. Some of the worries expressed by the focus groups linked to wider worries about the changing role of the NHS. Kings Fund

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