Scotland agrees deal for 'unaffordable' cystic fibrosis drug Orkambi The Scottish government has agreed a deal with the manufacturer of Orkambi, the cystic fibrosis drug that NHS England has said is unaffordable for its patients.
Scotland has not disclosed the price it has agreed to pay to treat 350 patients who are eligible for the drug. In England, there are more than 10,000 children and adults with the disease, nearly half of whom could benefit, making the potential bill south of the border very high. NHS England offered £500m over five years for Orkambi and other upcoming cystic fibrosis drugs, but the manufacturer, Vertex, turned that down. The Guardian
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