NHS agrees to fund drug for children with incurable disease, after High Court threat The NHS has agreed to fund a drug for children with a rare degenerative disease – weeks before families were due to go to court. Two sets of parents of children with Batten disease had been prepared to take their fight for the drug cerliponase alfa (Brineura) to the High Court.
NHS England announced on Wednesday that an agreement on price had been struck with the drug's manufacturer Biomarin. The National Institute for Health and Care Excellence (Nice) had previously said it could not be certain the drug was value for money.The Telegraph
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