Health watchdogs are being taken to court over claims they have breached human rights The health watchdog is being taken to court over claims it has breached human rights by not approving a drug to treat a cruel and deadly syndrome.
NICE controversially rejected the only available medication to treat one type of Batten disease for use on the NHS in England in draft guidance in February.
Outraged families – including the parents of a boy once cradled by Prince Harry in hospital – launched legal action to get cerliponase alfa available.
The High Court has now announced it will hold a judicial review into legality of the decision. Lawyers fighting to overturn the decision claim it was unlawful. The Daily Mail
NICE controversially rejected the only available medication to treat one type of Batten disease for use on the NHS in England in draft guidance in February.
Outraged families – including the parents of a boy once cradled by Prince Harry in hospital – launched legal action to get cerliponase alfa available.
The High Court has now announced it will hold a judicial review into legality of the decision. Lawyers fighting to overturn the decision claim it was unlawful. The Daily Mail
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