NHS accused of abandoning children with life-threatening disease The NHS rationing body has been accused of abandoning children with a life threatening genetic condition after it refused funding for a breakthrough drug that will let them live ‘long and healthy lives’.
Hopes were raised after ‘spectacular’ trial results in which youngsters with the tumour-causing disease tuberous sclerosis complex (TSC), some of whom had been given as little as 12 months to live, were saved by the one-a-day tablet.
But in July, NHS England reversed an earlier decision to recommend prescribing the breakthrough drug everolimus, claiming that it was ‘not currently affordable’. The Daily Mail
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